Are in attendance any message board websites for someone near Ushers syndrome please back?

Are in attendance any message board websites for someone near Ushers syndrome please back?
http://www.blindness.org/msgboard/forum.
http://children.webmd.com/usher-syndrome...
http://www.healthboards.com/boards/archi...
http://www.rnib.org.uk/webpals/...
http://botw.org/top/health/conditions_an...
hope these help
try :
www.deafblind.com/usher.html
www.blindness.org/content.asp?... - 19k
www.nidcd.nih.gov/health/heari... - 28k
is that in the order of the singer or is it an actual disease

howtogetevenwithyourex